The chairperson for Legislation/Education Advocacy is available to assist all members of the Spina Bifida community in various ways.
The purpose of the Legislative Committee is to assist Spina Bifida Association of America in letter-writing and telephone campaigns, with help of the Spina Bifida Association of North Texas community at large, by targeting specific members of the state and federal legislature in their capacities on various house and senate sub-committees. The goal is usually to further the mission statements of both SBANT and SBA. Previous efforts have focused on a National Birth Defects Prevention package and quality of life research and funding for the approximately 70,000 individuals currently living with Spina Bifida.
The purpose of the Education Committee is quite broad, but primarily focuses on assisting families of individuals attending or trying to attend public schools in Texas who require special education services. There is also an Education Day held each October that offers sessions for adults, kids and parents.
Spina Bifida Association of North Texas
Providers of support and information for families of children with disabilities, chronic illness and other special needs:
North Texas SNAP
Mission Statement: To foster feelings of independence, productivity and pride among special needs citizens by working with their families, and in cooperation and collaboration with the community to develop opportunities for their social, educational, and economic growth.
Social Security Administration
Texas Education Agency
See Adaptations for Special Populations and Commissioner’s Rules Concerning Special Education Services (revised 01/03). A copy of state law and rules may be obtained from the TEA website.
Employment for All
Unique, empowering way of looking at employment for individuals with disabilities. Presentation available by logging on to their website.
Self-Directed Support Corporations
Creating an SDSC – Putting the Individual with a disability in the key position to decide how they will live their life after parents/chief caregivers are no longer living. Brand new information for the United States and just beginning to get started in Texas.
Jackie L. Golden/Inclusion Research
Mental Health Mental Retardation of Tarrant County
The ARC of Dallas
2114 Anson Rd.
Dallas, TX 75235
Offering Summer Day Camping experiences for kids and teens with disabilties (ages 5-21). Crafts, swimming, games, computer fun, weekly field trips, watch movies, meet friends and so much more. Contact Jenny Pate for an information packet, 214-634-9810 or firstname.lastname@example.org
Texas Rehabilitation Commission