The Guidelines were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood. One hundred Spina Bifida experts from around the world spent three years developing these Guidelines that cover 24 topics ranging from bowel management to sexuality to physical activity and more.
The Guidelines for the Care of People with Spina Bifida have been accepted by the ECRI Institute Guidelines Trust. The ECRI Institute is an organization whose mission is to protect patients from unsafe and ineffective medical technologies and practices. Click here to view the guidelines on their website.
Soon there will be a phone application launched in order to easily access the guidelines.