Help is Available
New advances in the treatment and prevention of Spina Bifida are being made all the time. In recent years, surgeons have begun performing prenatal surgery on babies with Spina Bifida in hopes of lessening its effects later in life.the parents. After several medical institutes such as Vanderbilt and CHOP were performing this surgery and were showing great promise, the Management of Myelomeningocele Study (MOMS) was performed. In February, 2011, the results were published and made national news. Currently, there are several centers in the US that offer this surgery.
There are also medical advances for bowel and bladder issues that have greatly improved both quality of life and long term health of individuals with Spina Bifida. Thanks to these and other new medical treatments and technology, most people born with Spina Bifida can expect to live a normal life. People with Spina Bifida have many special challenges because of their birth defect, but their condition does not define who they are. People with Spina Bifida have careers, get married, and have children just like people who do not have Spina Bifida.
Every person affected by Spina Bifida experiences their own journey. Spina Bifida is often referred to as the “snowflake” condition as no two people are affected the same way.
Whether you are caring for a child with Spina Bifida or you are an adult with Spina Bifida, it is important that you learn as much as possible about your individual situation.
Learn more by visiting the CDC website HERE.
Help is available.
Take advantage of the many resources that are available to families affected by Spina Bifida. With advanced medical care, a wealth of education and the great social support that’s available today, people with Spina Bifida enjoy full lives and a prosperous future.
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